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Information about health pathways in Leeds

Information about health pathways in Leeds.

Pathways

Premature Baby

Having a premature or sick baby in hospital can be incredibly distressing for families.

We offer emotional and practical support to empower families and equip them with the knowledge and skills they need to provide the best possible care to their baby, for however long they live and for however long their stay in neonatal care.

We provide information about caring for premature and full term sick babies at every stage of their hospital journey, and after they have gone home.

Through our network of dedicated volunteers we provide face-to-face and email support, meaning families have access to practical information and a listening ear when they need it the most.

Families can also share experiences through the Bliss message board, hosted by Netmums, and read other family stories in Little Bliss magazine.

Contact details: 

I’m worried about my child’s talking

What to expect

Children develop their speech, language and communication skills at different rates. However, knowing what is typical can help you identify speech and language problems early. 

Find out here Ages and stages - Speech and Language UK: Changing young lives

 5 things you can do today:

  1. Follow your child's lead in play.
  2. Comment more than you question.
  3. Limit the amount of screen time.
  4. Repeat and expand what your child says.
  5. Read together every day.
What should I do if I’m concerned?

Children can be supported at home, in early years settings, at school, in health services, and in the wider community. Some children develop these skills easily, while others may need extra or specialist help.

Who should I speak to?

  • Under 5s: Health Visitor
  • Nursery age: Nursery SENCO
  • School age: Teacher or SENCO

The Communication Offer explains the services and resources available in Leeds to help every family, whatever level of support their child may need.

Online Support

You can find simple guidance online about:

  • how to help your child develop talking and communication skills
  • what to expect at different ages and stages

Community Support

Support is available in places your family already uses, such as:

  • your home
  • nurseries and childcare settings
  • schools
  • charities and community organisations

These services work together to help children communicate well in everyday life.

Levels of Support

1. Support for All

For every child and young person. Families can access information, advice and support from pregnancy onwards to help their child develop speech, language and communication skills. This includes support from maternity services, public health nursing, children's centres, community groups, hearing services and speech and language therapy resources. The aim is to help every child develop strong communication skills and identify any concerns early so the right support can be provided at the right time.

Click here to find services, resources and practical activities available at the Support for All level.

2. Focused Support

Focused support gives some children extra help with their speech, language, and communication. Parents, carers, nursery staff, teachers, and other professionals work together. Specialists can give advice and guidance when needed.

As your child grows, the people supporting them check how they are getting on and adjust the support if needed. They build on your child's strengths. Help with areas that are difficult. They can support you to use activities and strategies to develop communication skills.

Families do not need to manage this alone. Professionals can work together with you to understand your child's needs. They will help you set goals, and review progress over time.

Examples of focused support include:

  • Developmental reviews and advice from Public Health Nursing services.
  • Hearing assessments and follow-up support where appropriate.
  • Targeted support and communication programmes delivered in nurseries, schools, and other education settings.
  • Advice and guidance from specialists to help parents, carers, and practitioners support communication development in everyday activities.

If you have concerns about your child's speech, language, or communication, speak to 

  • your child's key worker
  • teacher
  • SENCO
  • health visitor
  • or other professional involved in their care

They can explain what support is available and help identify next steps.

Click here to find out more about the services, assessments, and targeted support available at the Focused Support level.

3. Specialist Support

For children and young people who need more help with their speech, language, or communication.

Some children need extra support because their communication needs are more complex. Some children may need support for a long time.

Specialist support helps children learn new skills. So that they can take part in everyday activities and communicate in ways that work best for them.

Specialists work closely with families and schools. They provide support that matches each child's strengths, needs, and goals.

Specialist support may include:

  • Speech and language therapy assessments and support.
  • Help for children who find it difficult to understand or use language.
  • Support for autistic children and young people.
  • Help for children who stammer.
  • Support for children with hearing needs.
  • Communication aids or other ways to help children communicate.
  • Assessments and support from other specialist services when needed.

Support may take place at home, in nursery, at school, in a clinic, or in the community.

Parents and carers are important members of the team. You know your child best, so your views and ideas help shape the support your child receives.

Find out more about the specialist services, assessments, and support available in Leeds.

Click here to find more details about Speech and Language Therapy Service. 

Please email any updates or suggestions to lcht.cslt@nhs.net

Oral Health – Help with keeping Teeth Healthy

Families of children with special educational needs and disabilities (SEND), especially those with autistic children, may face unique challenges when it comes to oral health.

toothPASTE is a free, online resource designed to support families of young autistic children in caring for their teeth. Developed in collaboration with families, professionals, and researchers, it offers practical, autism-informed advice that is non-judgemental and easy to follow.

The resource includes:

  • Small, manageable steps to support toothbrushing
  • Tips for reducing sugary foods and drinks
  • Guidance on preparing for and attending dental appointments

Explore the resource here.

Avoidant/restrictive food intake disorder (ARFID)

ARFID is when someone avoids certain foods, limits how much they eat or does both.

Beliefs about weight or body shape are not reasons why people develop ARFID.

Possible reasons for ARFID include:

  • negative feelings over the smell, taste or texture of certain foods
  • a response to a past experience with food that was upsetting, for example, choking or being sick after eating something
  • not feeling hungry or just a lack of interest in eating.

There’s currently no national pathway for support, but children and young people may access help through local services such as speech and language therapy, dietetics, or occupational therapy.

ND Hub

Neurodivergent individuals can process taste, touch and sound sensations differently to others, as well as other sensory experiences. This can influence an individual’s food and drink preferences. This can also make trying new foods particularly challenging.

It is important to support any dietary preferences and needs a neurodivergent individual may have while maintaining their nutrition and physical health.

Click here for information that can help you and your child understand what makes a healthy diet, answer concerns about eating in neurodivergent children and young people, and improve their confidence in trying new foods.

Resources

The West Yorkshire Neurodiversity Programme and All Star, have developed high-quality, practical, and accessible resources to support neurodivergent individuals and their families across Bradford, Calderdale, Kirklees, Leeds, and Wakefield.

Click here to view the eating and food support videos and resources. 

NHS & Clinical Resources

Support organisations

Organisations offering support to families: 

 

Neurodiversity information and resources across Leeds and West Yorkshire

The MindMate Neurodiversity Information Hub 

The ND Hub is a one-stop information resource to support all neurodivergent ND) children, young people and families in Leeds with or without formal diagnosis. The ND Hub advocates for a Needs-Led approach; information and recommendations are based on the area of strength and needs, rather than formal diagnosis. 

The ND hub can be accessed here - Neurodiversity information hub - MindMate

Right to Choose and the West Yorkshire Assessment and Medication Provider Framework

In West Yorkshire, we have committed to deliver a more consistent approach for our population when it comes to their Right to Choose and Patient Choice for Autism/ADHD assessment and diagnosis.

There is a wealth of information and resources about Right to Choose available on the West Yorkshire Health and Care Partnership website here - Patient Choice (Right to Choose) :: West Yorkshire Health & Care Partnership

The resource includes information on a range of topics including how to access RTC, who the WY accredited providers are, medication and shared care and the latest information on Activity Plans. 

Initiatives and Developments in Leeds 

Improving Access to Mental Health and Neurodevelopmental support in Leeds 

Many children and young people in Leeds are waiting too long to get the mental health support they need. The Integrated Care Board (ICB) in Leeds is working with local partners to make it easier for families to get help and reduce waiting times. 

Leeds Community Healthcare NHS Trust (LCH) and Northpoint are working together to improve the MindMate Single Point of Access (SPA), which will provide a centralised access point to both mental health support and neurodevelopmental screening

What is happening?

Emotional wellbeing and mental health pathways through MindMate SPA remain as they are currently. A new pathway has been set up to provide screening with onward assessment access where this care is needed, via Right To Choose. 

Priority pathways to CYPMHS neurodevelopmental assessing are still available through MindMate SPA referral as part of their mental health services. 

How does my child/How do I access the neurodevelopmental pathway?

You can use the MindMate SPA page to refer. Referrals can come from parents and carers, young people themselves, or from professionals, including GPs. 

What happens next 

Once a referral has been made:

  • Northpoint will send a Neurodevelopmental Assessment Questionnaire to parents and carers, the young person, and a relevant professional. 
  • Specialist clinicians will review the answers. 

They will decide whether:  

  • a neurodevelopmental assessment is needed now, or 
  • another type of support would be more helpful at this stage. 

If an assessment is needed, we will: 

  • Send you information about locally commissioned right to choose providers.
  • Make sure there is a smooth handover to the most suitable provider.
  • Share information about services, resources and support that may help them and their child.
  • Provide support in choosing a provider if you would like this.

Families whose child doesn’t meet the clinical suitability for a ND assessment will be contacted and have the opportunity to talk through what service and support they may find beneficial to address their child's needs. If an older young person refers themselves for assessment, this opportunity is also open to them.

Supporting families through the process 

The Leeds ICB, LCH, Northpoint and other partners are working together to: 

  • understand any barriers families may face 
  • reduce those barriers 
  • make sure families can fully take part in the process 
  • ensure families get the support they need 
ND School-age Needs Led Support Pilot

The NHS Leeds Integrated Care Board has secured some additional funding to pilot a new initiative where young people and families will be offered a needs-led assessment and therapeutic brief intervention to help understand, support needs, and provide guidance and signposting.

We are writing to all families whose child attend a school that is partaking in the pilot, have been on the MindMate SPA waiting list for ND triage for assessment suitability and have been identified by their school Cluster as meeting the criteria for this support.

Eligible children (joint with a parent / carer if beneficial) are being offered up to 4 therapeutic face to face sessions by a trained practitioner / therapist through the school Cluster. 

These sessions will provide an opportunity to:

  • Receive a therapeutic conversation to help understand needs and a source of needs management,
  • To ask questions about needs and neurodivergent characteristics.
  • To receive advice and signposting to support services and relevant resources.
  • Where appropriate, to have conversations to explore what the benefits may be to proceed with clinical diagnostic assessment 
  • Provide or explore strategies for responding to identified needs

The pilot will run between February and July 2026 and following this WY Integrated Care Board along with the clusters will be evaluating the impact of this additional support. 

ADHD Medication Pathway

Short-term additional investment has been made to support ADHD medication prescribing within Leeds Community Healthcare NHS Trust. This has resulted in measurable real time improvement in waiting times, and it is anticipated that the waiting list will reduce to under 18 weeks by mid 2026. 

Preschool autism needs led support pathway

Many children across the country wait a long time for an autism assessment. To help families get support sooner, we are changing how we work. We spoke to parents and carers to find out what matters most to them.

In Leeds, we are starting a new way of helping children and families. It is called the Needs-Led Support Pathway. This means we look at what your child needs help with right now, instead of waiting for an autism assessment.

This new pathway gives support based on what each child needs. It can help with things like:

  • Communicating and understanding others
  • Sleeping
  • Eating
  • How your child reacts to changes in environment, sounds, lights, or touch

Parents and carers can now access:

  • Online videos
  • Workshops for parents and carers
  • Groups that help with early communication

These are run by our specialist health visitors and speech and language therapists.

If your child needs more help, we can also offer one-to-one support from our team. This might include psychologists, advanced practitioners, or occupational therapists who help with everyday skills.

Preschool autism assessment pathway

As with the school aged pathway, a key priority is reducing the backlog of preschool aged children waiting for autism assessments.

Contacting families on the waiting list 

Families on the waiting list have already been contacted. We asked them to confirm: 

  • If their child still needs an autism assessment, and/or 
  • If their child still needs support

What happens next 

Families who still want an autism assessment for their child: 

  • Specialist clinicians will contact the parent/carer to get more information and review the answers
  • They will decide whether:  
    • A neurodevelopmental assessment is needed now or
    • Another type of support would be more helpful at this stage. 

 If an assessment is needed, we will: 

  • Aim to complete the assessment in a single appointment with a paediatrician or arrange an enhanced multi-disciplinary assessment
  • Share information about services, resources and support that may help them and their child 

 Families whose child doesn’t meet the clinical suitability for an autism assessment will be provided with the needs led support offer.

Transitioning to adult services

Moving from children to adult health services is a big milestone, the Roald Dahl Children with medical complexities Transition Nurse is able to guide you through it. 

They host nurse-led clinics where they talk to you about the different stages of moving up to adult care at a pace that works for you.

To make sure you feel comfortable and prepared they:

  • Arrange joint clinics where you can meet your new adult doctors alongside your familiar paediatric team.
  • Give you a tour of the adult wards and departments so you know exactly where you’re going.
  • Create a personalized plan to ensure your voice is heard and your medical needs are met.

Their goal is to make sure you feel confident and supported as you transition into this next chapter of your life.

For more information email hannah.crawford2@nhs.net

Immunisation - school age children

Immunisations help protect your child from serious illnesses.

They:

  • protect against serious and deadly diseases and illnesses
  • help stop diseases spreading to others
  • are safe and carefully tested before being added to the NHS schedule
  • can reduce or even remove diseases through herd immunity
  • May cause mild, short‑term side effects

You can find your child’s immunisation schedule in their Red Book (Personal Child Health Record PCHR) or on the NHS website.

The School Age Immunisation Service deliver the National School Immunisation Programme in schools and those not educated in school are invited to a community clinic. We routinely see reception up to and including year 11 aged children for the seasonal flu programme, year 8 aged pupils for HPV and year 9 aged pupils for Td/IPV, Men ACWY and MMR.

Our team do not offer the BCG vaccine against Tuberculosis (TB) as it is no longer part of the routine immunisation vaccination schedule, it is only for those at higher risk of getting TB. Please visit the TB service page for further information.

Leaflet for families

The Information for parents and carers leaflet  provides practical information for parents and carers and supports vaccination for school age children and young people with special educational needs and disabilities (SEND).  

This leaflet is designed to help parents and carers understand the importance and benefits of vaccinations for children and young people with SEND. It seeks to address many of the queries and concerns raised by parents and carers of children with SEND and provides practical advice and information on how to prepare for an immunisation appointment, what to expect, and where to find accurate and reliable trusted sources of information on vaccinations. 

Useful information